Hi my name is Charlie and #LongCovid has destroyed my life. Today is two years.
Before my 'mild infection' I was a healthy fit 30 year old biking 10 miles a day. Now I can't work or leave the house. I still can't breathe right. It‘s a nightmare.
Here are my 4 questions:
1. Why don't we have diagnostics yet for #microclots? It's simple test that could provide a biomarker for millions. Every patient in research setting has these detected.
This should be priority #1. Easy to do & immediate implications for treatment. Current absence is a failure.
2. Why still no robust health warning?
Whether #LongCovid prevalence is 5% or 50% (meta-analysis has 20-30%, 10% if vax), most conservative estimate is 1/20 people! A "medically rare event" is 1/1000.
If you work in govt, media, or medicine, your silence is immoral & cowardly.
3. Why haven't we started meaningful trials for #LongCovid?
We have dozens of promising case studies that should have prompted trials a year ago. This is where I'm genuinely confused. Lack of action doesn't make sense economically, politically, or medically. It's just insane.
4. What is our **plan** to help people who've lost their jobs & housing due to #LongCovid?
My short term disability runs out soon & I haven’t a clue what I'm going to do. This is a disaster. Long term disability is being flooded & has been denying majority of LC patients.